Scare for a Cure!!!
Saturday October 26, 2013
Starting at 4 p.m.
FOOD - PRIZES - FUN - HAUNTED HOUSE
DJ – BON FIRE
- FIREWORKS
Join us
on Saturday October 26, 2013 at 4 p.m.
726
Sumneytown Pike Harleysville PA 19438.
$20 donation
per person (kids under 15 FREE) includes food, drinks, games, prizes, and fun
for all ages including a kid friendly haunted house and a 15 and over haunted
house starting after dark!
The
Scare for a Cure fundraiser is inspired by 20 month-old Miea who suffers from
Sturge Weber Syndrome. With the help of our community last year Miea was able
to get treatment from the Kennedy Krieger Institute. As a result of Miea’s time there researchers
were able to determine the cause of SWS.
This information is HUGE! Researchers will be able to offer new
treatments and have hope for a cure. All the funds raised through this event will
go towards research at Kennedy Krieger Institute and help kids who suffer from
SWS.
Here is a letter from Miea's doctor who is leading SWS research:
Dear Families and Friends,
I hope this email finds you well. As you know, we
recently revealed the cause of Sturge-Weber Syndrome (SWS): a genetic mutation
that occurs before birth. These findings are truly a turning point for research
on SWS because we can now move quickly toward targeted therapies, offering the
promise of new treatments. Now, more than ever, we need to continue our
fundraising efforts because the hope for a cure has never been closer.
We are making good progress in the lab towards setting
a cell culture model for SWS-we expect to soon be testing the effects of novel
treatments. Discussions are underway as to how best to begin setting up
pilot treatment trials based on our new knowledge of the basis of SWS.
I’d like to take a moment and share with you how another
of our many supporters is helping to raise funds for our center and awareness
of SWS. Please consider joining the family, friends and neighbors of Carla
and Patrick Brown who will be hosting Scare for a Cure on their 4 acres
of farmland in Harleysville PA to benefit the Hunter Nelson Sturge-Weber Center
at the Kennedy Krieger Center. There will be 2 Haunted houses (one for
kids and one for older teens and adults), food, drinks and Halloween games, a
DJ, fireworks and a bonfire with fun to be had by all! They still need
volunteers to help out so if you can help or want to support this effort please
contact Carla at carlaiacona@me.com .
Together we can make a difference and discover a better future for all with SWS.
As Director of the Hunter Nelson Sturge-Weber Center at
Kennedy Krieger, and lead investigator for several ongoing SWS clinical and
translational studies here, I would greatly appreciate your support of this
initiative.
Thank you for your time,
Dr. Anne Comi
Anne M. Comi MD
Associate Professor
Neurology and Pediatrics
Kennedy Krieger Institute
Johns Hopkins School of Medicine
Director, Hunter Nelson Sturge-Weber Center
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